Lupus Institutes & Organizations

Alliance for Lupus Research

Alliance for Lupus Research (ALR) is an organization that is committed to finding better treatments for, and eventually curing, systematic lupus erythematosus (SLE). This debilitating disease affects many people throughout the world, and like similar organizations ALR believes that research is the key to a cure.

Since the beginning, ALR has invested more money into lupus research than any other agency, aside from government agencies. This is in part because of their ongoing fundraising program “Walk with Us to Cure Lupus”. Right now the organization is making progress in genetic research. This is leading the way for new medications and treatments, so patients can be treated even more safely and effectively.

 

Getting Involved

 

One of the best things about this organization is that they make it so simple to get involved. Take their Alliance for Lupus Research walk for example. You may want to join a specific walk near you or get your friends involved with you, but …


Visit WWW.LUPUS.ORG

Whether you have lupus or just want to contribute to lupus victims, visiting www.lupus.org is the place to begin. The website belongs to the Lupus Foundation of America (LFA). LFA is the oldest and largest nonprofit voluntary health organization that is focused on improving the lives of people with lupus. This organization has created programs to enlighten people about the disease, as well as producing effective research.

The website is very helpful to those who are suffering from the disease or wish to learn about the disease. It has a vast amount of basic information, as well as in-depth technical documents provided for anyone who is willing to learn. The site provides knowledge to every level of the community whether it is a physician, patient, or just an interested party.

When reaching the site, one of the first things you notice is an invitation into the community. Through this link you can actively interact with other people on the site, …


Lupus Donation Pickup Services

It is not always easy to find a lupus donation pickup service. The Internet can be a great tool in helping you do so. The following is a list of websites which you can visit that will help you find someone to pick up your donations:

  • Lfapickup.org
  • Lupus.org
  • Donationtown.org
  • Gooddonor.org
  • Lupuscolorado.org
  • Lupuspickup.org
  • Lupusmn.org

 

Scheduling your pickups online helps to keep costs down because there is less paperwork involved. It is also easier to reschedule appointments and to retrieve your receipts for your taxes. Most pick up services have switched to this method, although some would still rather hear from you by telephone.

 

Making a Lupus Donation

 

Making a lupus donation is easier than you think. As said before, most places will pick up your donations for you.  However, pick ups are not available in areas. For example, the Lupus Foundation of America will only have a lupus donation pickup program in Maryland, New Jersey, and Virginia. If …


Monetary Lupus Donations

Making lupus donations is a great way to contribute to society. You can donate money or items to the cause. There are many organizations which accept lupus donations. They are easy to contribute to, plus you will get a receipt you can put toward a tax write-off at the end of the year. The best part is that you didn’t have to do much to make a big difference in someone else’s life.

The following is a list of organizations that will accept lupus donations:

  • Lupus Foundation of America
  • Donation Town
  • Lupus Alliance
  • Lupus Initiative
  • Good Donor
  • Lupus International
  • Alliance for Lupus Research
  • Cure4lupus.org

 

These sites all have phone numbers and websites. All you need is a credit card to make your donation on the Internet or over the phone. Most of the sites also include addresses to send checks or money orders to as well. If you are unsure which site to donate to you can visit charitynavigator.org; …


Lupus Research Institute

The Lupus Research Institute is a non-profit organization which is dedicated to novel research in lupus. Their goal is to find safer and more effective treatments for lupus. The institute only supports the highest-ranked new science to prevent, treat, and cure lupus. They hope that through this research they will someday find a cure.

This organization has made great strides in understanding lupus. Some of their discoveries are very remarkable and interesting. One such revelation is that they have narrowed down two genes make lupus-prone mice susceptible to lupus. This gives some insight on how the disease develops.

Another notable fact is that they have confirmed five explanations of how vital organs are damaged by lupus. This is key because now they can begin to find ways to stop the damage. They have also identified molecules which act as control points in the immune system. This research will insure better medicines in the future.

These are just a few examples …


Find a Lupus Treatment Center

It is easier than you think to find a lupus treatment center. There are many available; the trick is finding the one that is right for you. This article will discuss various treatment centers and the different aspects that make them unique. This way you are able to make an informed decision on which lupus treatment center you choose.

The internet is a great tool to use anytime you are trying to compare things. It really cut down on the time that you spend searching and researching. Here are the websites of lupus treatment centers that you should look into:

  • University of California San Francisco (UCSF) Medical Center– At this site treatment includes medicine balanced with rest and exercise, as well as maintaining a healthy diet.

 

  • John Hopkins Lupus Center– At this treatment center they strive to “provide clinical care while seeking to better understand the causes and ways to control both lupus and APS [antiphospholipid

What is Lupus NSW?

Lupus NSW is short for The Lupus Association of New South Wales Inc. Right now they have over 1,100 members across Australia and are still growing. They provide services to people diagnosed with Lupus and other associated connective tissue diseases.

Their website, Lupusnsw.org.au, is a great place to go to learn about and seek help with lupus. They offer a phone number to call and speak to a representative if you have trouble searching the site and they give a vast array of information on living with lupus.

On this site, membership is just $35 per year. For that amount they will provide phone counseling, support groups, and a library of information that you have access to. You will also receive a quarterly newspaper. The majority of the fees go to education and awareness.

 

Making a Donation

 

One great thing about this Lupus NSW is that they are very clear about where the money you donate goes to. …


Ways to Get Involved in Lupus Fundraising

There are lots of ways that you can get involved in Lupus Fundraising. There are also many organizations that need your help. Many people who want to help don’t do so because they don’t know where to start. The following information is a collaboration of how where to go, what websites to visit, what organizations you can join to help you do your part.

Why not start by taking charge yourself? The website Lupusresearch.org lines out some very good ways that you can start fundraising on your own. You can help by:

  • Starting a letter writing campaign to your family and friends.
  • Using you computer to make WebPages and send emails.
  • Soliciting corporate sponsors
  • Talking to a walk coordinator to find ways to help

 

If you’re not interested in starting campaigns up by yourself, no worries, this site still provides lots of ways that you can help. First of all, you can make a donation yourself. This couldn’t …


Finding Lupus Treatment Centers

Lupus is a hard disease to cope with, but with support and the right treatment it doesn’t have to be so difficult. There are a vast number of lupus treatment centers available to you or your family. Let’s take a look at what is available to help you and your family with your needs.

One of the lupus treatment centers that are available is The Bridge Recovery Center. Located in Southern Utah, it speaks of vast openness and unpolluted air of the area. Its mission is just as clear “to meet the needs of individuals with unresolved medical conditions”. This is a three week program, and it is design to help you as you work on your own personal health.

The Mayo Clinic is a not-for-profit organization which reinvests all its earnings into research, education, and improving its practices. It is located in Arizona, Florida, and Minnesota. The clinic accepts patients nationally and internationally and assures that language and distance …


Available Lupus Charities

Believe it or not, you are not alone in your fight against lupus. There are plenty of lupus charities out there to help, and many people out there fighting for people that are dealing with lupus. Whether you are seeking to help in that mission, or you have lupus and wish to seek help, this article will be very beneficial to you. Please read on.

The following is a list of several charity organizations that have been created assist individuals in their battle with lupus:

  • Lupus Foundation of America– This foundation is dedicated find the causes and cure for lupus. They are dedicated to funding research that may eventually find a cure, advocating for people with lupus, offering support groups and medical experts to people with lupus, and helping to cut the cost of medication to lupus sufferers. This is probably the most popular of lupus charities.

 

  • Lupus Research Institute– This nonprofit organization is “solely dedicated to

Lupus Anticoagulant Panel

A lupus anticoagulant panel is a series of tests that are usually performed on people, with or without lupus, in cases of thrombosis, miscarriage, or a prolonged PTT test. Phospholipids are substances within the lining of your cells that prevent blood clotting. In some cases, people have antibodies which fight against these substances; these are called anticoagulants. People who have these anticoagulants are often at risk of high blood pressure or blood clotting.

Lupus anticoagulants (LA) are usually found in people with autoimmune diseases such as systemic lupus erythematosus (SLE). However, they can also be found in people who take certain medications, people with inflammatory bowel disease, infections, or certain tumors. Many times lupus anticoagulants are found in cases of repetitive miscarriages, and sometimes in cases of neonatal lupus.

 

Testing

 

Lupus anticoagulant panels are ordered in cases of a prolonged PTT test, an unexplained thrombotic episode, or multiple miscarriages. The test may also be performed to evaluate if …


Finding a Lupus Charity Pickup

Using a lupus charity pickup is a very convenient way to get rid of some of your old stuff while contributing to an important cause. There are many charities that are willing to come right up to your door to help you with your donation. This article will help you locate a lupus charity pickup near you.

The most convenient way to set up a charity pick up for lupus is through the Internet. There are many sites that you can choose to make your lupus donation through. Some of them are as follows:

Lupuspickup.org- this is a great place to start. It is part of the Lupus Foundation or America’s official site. All you have to do is enter in your zip code to find a center near you that will pick up your items. If there is nothing nearby, the site will direct you elsewhere.

GoodDonor.org- this website is also connected directly to the Lupus Foundation of America. …


Lupus.org Pickup

Scheduling a lupus.org pickup is easy. All you have to do is visit the website at Lupuspickup.org and enter in your zip code. Before you know it you will have a van in front of your door, ready to pick up your donations.

You don’t even have to lift a finger, just wave as the truck takes all of those excess items away. They will leave a receipt that you can use for your taxes. You will feel completely refreshed knowing that you did your part in helping out with this terrible disease.

 

Donations

 

Right now there are many household items which can be donated to the Lupus Foundation. These include:

  • Clothing of all types and sizes
  • Shoes of all types and sizes
  • Bedding items
  • Draperies and curtains
  • House wares and glassware
  • Jewelry and Cosmetics
  • Toy and Games
  • Small Appliances

 

Lupus.org pick up does not accept large items or furniture. If you do not wish to schedule …


Information on the Lupus LA Website

Anyone who is living with lupus can use more information about the disease. A good way to get information is by visiting the Lupus LA website. This website is the official site for the west coast division of the SLE Lupus Foundation. Their goal is to someday find a cure for lupus and to improve the overall quality of life for all people currently living with lupus. Their website is a great way for people living with lupus to find information about symptoms, treatment options, support groups, and more. Medical professionals can also use the site to keep up to date on what is going on in the medical field relating to the disease.

The “About Lupus” link is one of the most useful pages on the website. This page includes all kinds of different information about the disease. It is also available in Spanish. This page is going to be most beneficial to patients. It has a lot of …


Information on The Lupus Foundation Website

A good foundation or organization website will provide its users with a variety of different information. The Lupus Foundation website is a well developed website that is easy to navigate. It has a lot of different information for both patients who have been diagnosed with the chronic autoimmune disease and for the medical professionals who treat it. Links are conveniently placed along the top of the webpage, and there are also links at the bottom of the page to help people who already have an idea of why they are at the website, whether it is to donate, to get information, to look at the shop, or something else.

People who have been recently diagnosed with lupus can benefit greatly from The Lupus Foundation of America website. They have a variety of information about the disease itself. They can look at the various different symptoms that can occur throughout the progression of the disease. This can help to give patients …


Finding A Local Lupus Association

There are many different organizations and foundations that are specifically focused on the autoimmune disease lupus. A lupus association serves a variety of functions in the local community as well as in the medical community. They will offer options for patients who have been diagnosed with lupus, their caregivers, their families and loved ones, and the medical professions who treat the disease. Most lupus associations will have a large website that includes a lot of up to date information about the disease for these people. This makes it easier for people to get the information they need quickly and easily, right from their own home.

Finding a local organization or lupus association can be as easy as searching for one in an Internet search engine. A search engine can give you a great starting point of lupus associations that are in your area. They may also give you links to lupus organizations are serve people internationally. Both types of associations …


Finding Lupus Support Groups Near You

Lupus is a chronic disease that can be difficult to live with sometimes. Patients can benefit from various lupus support groups that they can attend either individually or with their families and loved ones. A support group can be aimed to people with chronic diseases or it can be just for people with lupus. Support groups can also be for people who suffer from the disease, or it can be for their families and loved ones. Support groups offer a way for people to connect with each other about a common subject. Here, they can find advice, a shoulder to cry on, understanding, and a social outlet.

It can sometimes be hard to find lupus support groups in your local area. However, different resources can be helpful. Many physicians and specialists who treat lupus will be aware of support groups for lupus. They may be able to recommend local centers that have support groups for patients with chronic diseases. There …


Navigating the Mayo Clinic Lupus Website

The Mayo Clinic has a website that offers all kinds of information about various health problems. They have a Mayo Clinic Lupus section that is devoted to the autoimmune disease, including information about the disease’s symptoms, what can cause it, the different treatments available, and the research that is currently going on. This information is very useful for patients, their families and loved ones, and for medical professionals and students. The Mayo Clinic has a good reputation as a medical organization, so people can feel comfortable knowing that their information is accurate and up to date.

The lupus Mayo Clinic page has many different links for people to navigate, depending on the type of information they need. Some of the different links they have include symptoms, causes, risk factors, alternative medicine, tests and diagnosis, and more. Each page is laid out simply, and it also has a print option so that people can print the page and take the information …


Qualities of Lupus Physicians

When someone is diagnosed with lupus, it is important to find a quality doctor to help treat the disease and its symptoms. There are many different lupus physicians out there who are very knowledgeable about the disease and how it affects the body. These physicians should be up to date on the most recent treatments, research into the causes and triggers of lupus, and how lupus can be prevented. For a patient with any type of lupus, this type of physician can provide support and help that other medical professionals may not even be aware of, so they are a valuable asset to their medical treatment team.

A good lupus physician should have a solid background in treating patients with lupus. This might be something a patient will ask about before making an appointment. Another thing to look for is any medical publications the physical has made that relates to the disease lupus. This could be about the symptoms of …


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