The symptoms of lupus can mimic so many other health problems; you may need patience while waiting for a diagnosis. Here’s some information to help you prepare for your first lupus physician appointment.
Write down your symptoms, including when you first noticed them and how often they occur. Write down key personal information, including any recent changes or major stressors in your life.
Make a list of your key medical information, including any other conditions for which you’re being treated and the names of any medications, vitamins or supplements you’re taking. Your doctor will also want to know if you have any family history of lupus or other autoimmune disorders.
Take a family member or friend along, if possible. Sometimes it can be difficult to soak up all the information provided to you during an appointment. Someone who accompanies you may remember something that you missed or forgot.
Write down questions to ask your doctor. Creating your list of questions in advance can help you make the most of your time with your doctor. The following are sample questions you can ask your doctor: What are the possible causes of my symptoms or condition? What tests do you recommend? If these tests don’t pinpoint the cause of my symptoms, what additional tests might I need? Are there any treatments or lifestyle changes that might help my symptoms now? Do I need to follow any restrictions while we’re seeking a diagnosis?
In addition to the questions that you’ve prepared to ask your doctor, don’t hesitate to ask questions during your appointment at any time that you don’t understand something.
What to expect from a lupus medical doctor?
While on a lupus medical visit, your lupus medical doctor likely to ask you a number of questions. Being ready to answer them may reserve time to go over any points you want to spend more time on. Your doctor may ask: What are your symptoms? What part of your body is affected? When did you first notice these symptoms? Have your symptoms changed over time? Do your symptoms seem to come and go? Have you noticed anything that seems to trigger your symptoms? Do your symptoms include extreme fatigue? Have you had pain, stiffness or swelling in your joints? Does sun exposure cause you to develop skin rashes? Do your fingers or toes turn cold, pale or purple from cold or stress? Do your symptoms include chest pain with deep breathing? Have you experienced shortness of breath? Have you had an unexplained fever?
